As a co-founder of the CHD2 UK support group, I was becoming increasingly aware that many of our new families with recently diagnosed CHD2 children were having difficulty coming to…
Medication Side Effects – Keppra (Levetiracetam)
It was so hard without genetic testing for us, my son, Elias aged 36 years almost killed himself under Keppra. In the first week of introduction of this anti-seizure medication…
Children’s social care: a parent’s perspective
According to advice on the Contact For Families With Disabled Children website, "the law says that councils must assess every child who is or may be a child ‘in need’.…